Disease Organizations

YourMedicalBills.com encourages individuals to seek organizations that offer disease specific services. This allows you to learn as much as possible about your illness, disease or condition.

This page includes an extensive list of disease specific organizations that offer consumer support, resources and education. Please bookmark this address before clicking on a link below. This will ensure you can find this page in the future.

Click on the name of an Organization to go to their web-site.

• Acoustic Neuroma Assocation - ANA is a patient member organization, providing information and support to persons diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves.
• Allergy & Asthmatics Network: Mothers of Asthmatics, Inc. – Allergy & Asthma Network Mothers of Asthmatics (AANMA) is a nonprofit family health organization dedicated to eliminating suffering and death due to asthma, allergies and related conditions.
• ALS Association (ALSA) – National not-for-profit health organization dedicated to amyotrophic lateral sclerosis (ALS) and a leading source of information for those battling ALS (often called Lou Gehrig’s disease.) and for people looking for the latest news and information about the disease.
• Alzheimer’s Disease Education and Referral Center (ADEAR) – Alzheimer’s Disease Education and Referral (ADEAR) Center Web site that can help you find current, comprehensive Alzheimer’s disease (AD) information and resources from the National Institute on Aging (NIA).
• American Academy of Allergy, Asthma & Immunology - The largest professional medical organization in the United States devoted to the allergy/immunology specialty.
• American Association of Kidney Patients (AAKP) – A national non-profit organization founded by kidney patients for kidney patients. They strive to educate and improve the health and well-being of chronic kidney disease (CKD) patients, those on hemodialysis, peritoneal dialysis and transplant recipients.
• American Association for Klinefelter Syndrome Information and Support (AAKSIS) – A national volunteer association with the mission of education, support, research, and understanding of 47 XXY and its variants, collectively known as Klinefelter syndrome.
• American Behcet’s Disease Association – The American Behcet’s Disease Association works towards the following goals: Locating people with Behcet’s Disease and providing them with information and support. Providing current and pertinent educational information to the medical community and to aid in diagnosing and treating Behcet’s Disease. Decreasing isolation and stress from the lives of people with Behcet’s Disease and their family members.
• American Brain Tumor Association - The first national, nonprofit organization dedicated to promoting brain tumor research, while offering information and support to brain tumor patients and their families.
• American Cancer Society – The American Cancer Society’s international mission concentrates on capacity building in developing cancer societies and on collaboration with other cancer-related organizations throughout the world in carrying out shared strategic directions.
• American Chronic Pain Association – An organization that facilitates peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
• American Diabetes Association – The Association funds research to prevent, cure and manage diabetes; delivers services to hundreds of communities; provides objective and credible information; and gives voice to those denied their rights because of diabetes.
• American Foundation for AIDS Research – Founded in 1985, amfAR is dedicated to ending the global AIDS epidemic through innovative research. With the freedom and flexibility to respond quickly to emerging areas of scientific promise, amfAR plays a catalytic role in accelerating the pace of HIV/AIDS research and achieving real breakthroughs.
• American Health Assistance Foundation (AHAF) – A registered 501(c)(3) non-profit organization that funds research seeking cures for Alzheimer’s disease, age-related macular degeneration and glaucoma, and provides the public with information about risk factors, preventative lifestyles, available treatments and coping strategies.
• American Liver Foundation – Our mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease.
• American Lung Association – The mission of the American Lung Association is to save lives by improving lung health and preventing lung disease.
• American Lyme Disease Foundation – A private organization-based site that can be recommended to patients for education on Lyme disease
• American Melanoma Foundation - Founded in Southern California in 1990 by a group of melanoma patients and their relatives who believed in the importance and ever-growing need for support of specific research for new treatment approaches in melanoma, one of the most serious of all cancers.
• American Parkinson Disease Association (APDA) – Founded in 1961 to “ease the burden and find a cure” for Parkinson’s disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease.
• American Society for Reproductive Medicine (ASRM) - A voluntary, non-profit organization devoted to advancing knowledge and expertise in reproductive medicine, including infertility, menopause, contraception, and sexuality.
• American Tinnitus Association – The nation’s foremost organization working to cure tinnitus. Our board and staff work with researchers, tinnitus sufferers, donors, legislators and other concerned individuals to support vital tinnitus research.
• ALSSO (Amyotrophic Lateral Sclerosis Service Organization) - A non-profit organization to serve the ALS community in the Inland Northwest and to offer assistance to other non-profit organizations that help patients and families with ALS.
• Anxiety Disorders Association of America - A national nonprofit organization solely dedicated to informing the public, health care professionals, and media that anxiety disorders are real, serious, and treatable.
• Arthritis Foundation – The only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions.
• Asbestos.Net - A comprehensive resource on the topic of asbestos and its devastating effects, including mesothelioma, asbestosis, and other asbestos-related diseases.
• Asthma & Allergy Foundation of America (AAFA) -  A national network of 9 regional chapters that provide a variety of services, educational programs and support for asthma and allergies.
• ADD Resources – An organization to help people with ADHD achieve their full potential through education and support.
• Autism Network International – An autistic-run self-help and advocacy organization for autistic people.
• Autism Society of America – The nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism.
• Bone Marrow Organization - Founded in 1992 with a single vital goal: to improve the quality of life for children and adults who are undergoing transplantation as a life saving treatment for leukemia, Hodgkin’s and non-Hodgkin’s lymphomas, multiple myeloma, aplastic anemia, severe combined immunodeficiency, neuroblastoma and many other cancers and genetic disorders. 
• Brain Aneurysm Foundation – Provides support and educational materials to the medical community, the newly diagnosed, survivors, family members, friends and the general public regarding the facts, treatment options, and recovery process for brain aneurysms. 
• Brain Injury Association – Founded in 1980, the Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). 
• Breast Cancer Research Foundation - The mission of The Breast Cancer Research Foundation® is to achieve prevention and a cure for breast cancer in our lifetime by providing critical funding for innovative clinical and translational research at leading medical centers worldwide, and increasing public awareness about good breast health. 
• Cancer411 - Cancer411.org is dedicated to helping cancer patients and their families find the information that they need. 
• Cardiac Arrhythmias Research and Education (C.A.R.E.) Foundation - Cardiac Arrhythmias Research and Education Foundation, Inc. is a 501(c)(3) nonprofit corporation based in Washington state. 
• CDG Family Network Foundation – The CDG Family Network is a non-profit 501 (c)(3) organization founded by parents seeking information and support for a group of disorders known as Congenital Disorders of Glycosylation. 
• Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) - The nation’s leading non-profit organization serving individuals with AD/HD and their families. CHADD has over 16,000 members in 200 local chapters throughout the U.S. Chapters offer support for individuals, parents, teachers, professionals, and others.
• Children’s Heart Organization - Congenital Heart Defect site where you will find information about their society, resources for parents, family and children, and stories from people just like you. 
• Chromosome 9P : Network for 9P Syndrome - A non profit organization whose mission is to provide information and support to families with children who have 9p- Syndrome. 
• Chronic fatigue and immune dysfunction syndrome (CFIDS) - Find detailed information about CFS, its symptoms, diagnosis, treatment, important research findings and how it affects the lives of those who live with it everyday. 
• Coma Recovery Association - A non-profit support organization for coma and brain injury survivors, family members, friends and professionals. 
• Congenital Heart Information Network - A national organization that provides reliable information, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. 
• Corporate Angel Network - Corporate Angel Network is the only charitable organization in the USA whose sole mission is to ease the emotional stress, physical discomfort and financial burden of travel for cancer patients by arranging free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business.
• Crohn’s and Colitis Foundation of America, Inc. - A non-profit, volunteer-driven organization dedicated to finding the cure for Crohn’s disease and ulcerative colitis. 
• Cystic Fibrosis Foundation - A non-profit donor-supported organization to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
• Discovery Fund for Eye Research - combat blindness and eye disease every day, while providing support and education for people with impaired vision and total vision loss.
• Ehlers-Danlos National Foundation (EDNF) – Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome
• Endometriosis Association – The recognized authority on endometriosis, a life-altering hormone and immune system disease affecting millions worldwide.
• Epilepsy Foundation of America (EFA) – A national voluntary agency solely dedicated to the welfare of the more than 3 million people with epilepsy in the U.S. and their families.
• Epilepsy Institute - A non-profit social service organization, is dedicated to improving the quality of life of people with epilepsy and their families.
• Family Caregiver Alliance – The first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home.
• Family Voices National Office – Aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.
• Fight Spinal Muscular Atrophy (SMA) – An international nonprofit organization dedicated to finding a treatment or cure for spinal muscular atrophy (SMA), the leading inherited killer of children under two.
• Food Allergy & Anaphylaxis Network (FAAN) – Works to build public awareness of food allergy through the media and through education, advocacy, and research efforts.
• Foundation Fighting Blindness – Drives the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
• Freedom From Fear Organization - a national not-for-profit mental health advocacy association founded in 1984 by Mary Guardino. Ms. Guardino founded FFF as an outgrowth of her own personal experiences of suffering with anxiety and depressive illnesses for more than 25 years.
• Friends’ Health Connection (FHC) – A nonprofit organization focused on the entire continuum of health.  Thousands of people look to us as a partner in their journey towards a most healthy, fulfilling life.
• Gateway for Cancer Research – dedicated to curing cancer through funding patient-centered clinical studies that make an impact on those battling cancer.
• The Glaucoma Foundation - A not-for-profit organization committed to leading the fight against glaucoma and to identifying new treatments and cures.
• Hemi Kids Organization – An email discussion group where parents of infants and children who have mild to moderate hemiplegia or hemiplegic cerebral palsy share information.
• National Hemophilia Foundation – Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
• Hepatitis Foundation International – Dedicated to the eradication of viral hepatitis, a disease affecting over 500 million people around the world.
• Histiocytosis Association of America – a non-profit organization registered with the Federal Government, is dedicated to helping those dealing with the effects of rare histiocytic disorders by providing a variety of educational programs and emotional support services
• Huntington’s Disease Society of America – a national non-profit voluntary health agency dedicated to finding a cure for Huntington’s Disease.Hypoglycemia Support Foundation
• Institute for the Study and Treatment of Endometriosis (ISTE) - a not-for-profit organization fostering research, education, and clinical advances in Endometriosis.
• Irritable Bowel Syndrome Association - public education organization for those who suffer from IBS, those who are looking for support for someone who has IBS, medical professionals who want to learn more about IBS and to be responsible patient advocates on local, regional and federal levels.
• Susan G. Komen Breast Cancer Foundation – the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.
• Lance Armstrong Foundation – Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, LAF inspires and empowers people affected by cancer.
• Leukemia and Lymphoma Society -  the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services.
• Leukemia Research Organization – The mission of the Leukemia Research Foundation is to conquer leukemia, lymphoma, and myelodysplastic syndromes by funding research into their causes and cures and to enrich the life of those touched by these diseases.
• Locks of Love – a public non-profit organization that provides hairpieces to financially disadvantaged children in the United States and Canada under age 18 suffering from long-term medical hair loss from any diagnosis.
• Lupus Foundation of America - the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.
• Lyme Disease Foundation - the premier nonprofit dedicated to finding solutions for tick-borne disorders. Realizing the ability to find solutions involves a multi-discipline effort, the LDF includes the four cornerstones of progress (businesses, patients, government, and the medical community) to work together to find solutions to tick-borne disorders.
• Lyme Disease Network – non-profit foundation dedicated to public education of the prevention and treatment of Lyme disease and other tick-borne illnesses.
• Make A Wish Foundation of America - the online home of the nation’s largest wish-granting organization.
• March of Dimes Birth Defects Foundation – dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality.
• Melanoma Education Foundation – a nonprofit organization devoted to saving lives from melanoma, a common skin cancer that is often deadly unless detected early before there are any symptoms.
• Mesothelioma & Asbestos Awareness Center - The Mesothelioma and Asbestos Awareness Center has long been recognized as the web’s leading organization for relevant and authoritative information regarding asbestos and health complications associated with asbestos exposure.
• Mission of Hope Cancer Fund – primary purpose is to provide Direct Financial Assistance to cancer patients and their families. MHCF also provides educational information and emotional and grief support on cancer related issues.
• MUMS - a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition.
• Muscular Dystrophy Association - MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
• Myelin Project – The Myelin Project exists to end human suffering from demyelinating diseases.
• International Myeloma Organization - The IMF is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.
• National Alliance for the Mentally Ill (NAMI) – dedicated to improving the lives of individuals and families affected by mental illness.
• National Association for Incontinence – a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders.
• National Attention Deficit Disorder Association – provides  information, resources and networking to adults with AD/HD and to the professionals who work with them.
• National Cancer Institute - The National Cancer Institute’s research programs are extensive and contain many innovative initiatives.
• National Down Syndrome Society – national advocate for the value, acceptance and inclusion of people with Down syndrome.
• National Grave’s Disease Foundation – committed to reaching out to those affected by Graves’ and other thyroid related diseases.
• National Headache Foundation - a source of help to sufferers’ families, physicians who treat headache sufferers, allied healthcare professionals and to the public.
• National Institute on Aging - leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life.
• National Niemann-Pick Disease Foundation – supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and they provide support services for individuals and families affected by NPD.
• National Organization for Albinism, Hypopigmentation – a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them.
• National Organization for Rare Disorders (NORD) – a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them.
• National Osteoporosis Foundation – the nation’s leading voluntary health organization solely dedicated to osteoporosis and bone health.
• National Pemphigus Foundation – dedicated to providing information and support to the community of people living with pemphigus and pemphigoid
• National Psoriasis Foundation - the largest psoriasis patient advocacy organization in the world.
• National Rosacea Society – the world’s largest organization dedicated to improving the lives of the estimated 14 million Americans who suffer from this widespread but poorly understood disorder.
• National Tay-Sachs & Allied Diseases Association (NTSAD) – The mission of the National-Tay Sachs & Allied Diseases Association is to lead the fight to treat and cure Tay-Sachs, Canavan and related genetic diseases and to support affected families and individuals in leading fuller lives.
• Neuropathy Association - the leading national non-profit organization serving the peripheral neuropathy community.
• Paralyzed Veterans of America – works to maximize the quality of life for its members and all people with SCI/D as a leading advocate for health care, SCI/D research and education, veterans’ benefits and rights, accessibility and the removal of architectural barriers, sports programs, and disability rights.
• Pediatric Stroke Network – The goal of this site is to bring together friends and families of infant or childhood stroke survivors from around the world.
• Prader-Willi Syndrome Association – a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns.
• Proteus Syndrome Foundation - The main goals are patient and family support, public education, medical staff education, promotion and funding of research and ultimately the treatment and cure of Proteus Syndrome.
• Scleroderma Organization – the leading non-profit supporter of scleroderma research in the United States, allotting more than $1 million annually to find the cause of and cure for scleroderma.
• Sickle Cell Society - believes that every sickle cell sufferer has the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this.
• Sidran Institute – a 501(c)(3) nonprofit organization of international scope that helps people understand, recover from, and treat: traumatic stress (including PTSD), dissociative disorders, and co-occurring issues, such as addictions, self injury, and suicidality.
• Skin Cancer Organization – Since its founding in 1979, The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, and the need for early detection and prompt, effective treatment.
• Spinal Cord Injury - the nation’s oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families.
• Spina Bifida Association of America – the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect.
• Stuttering Foundation of America – provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.
• First Candle/SIDS Alliance – national nonprofit health organization uniting parents, caregivers and researchers nationwide with government, business and community service groups to advance infant health and survival.
• Tourette Syndrome Association - the only national voluntary non-profit membership organization in this field.  Their mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome.
• United Cerebral Palsy – the national organization and its nationwide network of affiliates strive to ensure the inclusion of persons with disabilities in every facet of society—from the Web to the workplace, from the classroom to the community.
• Cody Unser First Step Foundation – a New Mexico not-for-profit corporation aimed at raising research funds to fight paralysis and to build awareness of Transverse Myelitis.
• Vascular Birthmarks Foundation - VBF has successfully networked thousands of children and adults into treatment, sponsored significant research, educated physicians and affected family members about the diagnosis and treatment of vascular birthmarks and has established chapters all over the world.Vascular Disease Foundation
• Voice for Joanie – a group of volunteers providing computer technology and assistance so that people with ALS have a “voice”
• Walter Payton Cancer Fund - created by the Payton family to honor Walter’s life. After witnessing the ravaging effects of cancer on her husband, Connie Payton was determined to direct new research funding toward researchers seeking a cure with the same grit and determination that Walter showed on the football field as well as during his battle with cancer.
• Wilson’s Disease Association (WDA) – dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Wilson disease.
• World Parkinson Disease Association (WPDA) – a not-for-profit organization with no political affiliations. To maintain its total and absolute independence and impartiality, the Association will not endorse, defend or promote the interests of any medical, hospital or pharmaceutical entity or any other entity with lucrative or promotional purposes. In the development of its activities, the Association will not discriminate against race, color, social condition, political or religious affiliation.

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